Baby Oh: 1 in 94
Posted on Nov 29 in ASD, gluten, milkby NikaPrint
This is our sweet and loving Baby Oh and he is autistic.
His mommy, daddy, and two older sisters are going to do what ever it takes to guide him to safe shores where he can share his dreams with us and then blast off into his beautiful life.
1 in 94 boys, 1 in 150 children, in the US are autistic.
I hope the docs are wrong but that doesnt matter right now. Baby Oh doesnt talk and he is hard to reach. We are going to fight this and do what it takes to keep him from slipping away.
This is one of the reasons I have not been able to blog as much and it will continue to impact all parts of our lives in the future.
I share this not for sympathy or as an explanation. I think I share this so that I can hide less from it, meet it head on, in all parts of my life.
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[...] may remember my mentioning in a previous post (Baby Oh: 1 in 94) that Baby Oh (Toddler Oh now) was diagnosed as being on the autistic [...]
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He is a beautiful boy. I admire your courage in blogging about this, and also in meeting it head-on to seek out what’s best for your child. I only had one autistic student in my whole teaching career, but Nick was a charming boy, now in high school and he still comes to visit me at school once in a while. His mother was a fierce advocate for him, which resulted in early treatment that seemed to make a huge difference for him. The year he was in my fourth grade class, he took a computer completely apart and put it back together. He had lots of special gifts, and was really a pleasure in the classroom. I wish you all the best dealing with this challenge.
K: thank you for sharing that! Its not hard to share here when I have friends like you, truly.
I had no idea that autism was so prevalent, though it does seem that I know more people than ever with children who’ve received that diagnosis. The more we know, the more we share, the more we can provide support or find the support we need. Your blogging friends will be here for you, wishing your family an abundance of strength, courage and love in the years to come.
What a beautiful, laughing boy! Raising children takes so much time and effort, and I know it’s even more for you. I’m in awe of your blog and photography, so I hope you can squeeze time in for you too when you can. Hugs.
L: Yeah I didnt know this either! Thank you for being such an excellent friend
Shari: goodness, thanks! I thought I would do more this thanksgiving break but it just didnt happen!
Nike in all your photos, he looks like he couldn’t be happier! THAT is what’s most important – that he is loved and cared for.
this is a very good picture. i know a little about Autism, what type does he have?
Dale: thnx
We are still in the diagnostics stage so I do not have a term to use :-/. I am guessing he is highly functional – but not aspergers because he is speech delayed
Who did the diagnosis? Don’t trust just any doctors to do this? Make sure you are talking to a developmental pediatrician from a hospital with a good ASD diagnosis reputation. Not all hospitals are created equal and there is a wide birth where diagnostic interpretation is concerned. The good thing is there is lots that you can do to help him develop. http://www.atotalapproach.com/
TedC: thnx for asking and heads up. GP asked us to get him eval’d. went to clin psych and he said he was potentially on the spectrum but that he needed to see him with other kids to differentiat btw PDD and ASD (this guy wins no prizes in my book – will not go into details), went to team of developmental psychologists who eval’d him and recommended Dx of ASD but we do not have a qualitative specific (as in where on spectrum), next on this lovely rollercoaster would be ANOTHER clin psych to I GUESS get a more specific Dx?!
what a gorgeous baby!!1 there’s something for you here.
http://jugalbandi.info/2008/12/milk-101/
Just catching up on my blog reading. I, too, had no idea autism was so prevalent. You have a beautiful boy and he is fortunate to have parents who are so willing to discover and meet his every need.
Your baby is so beautiful! It’s good that he has no trouble smiling. I just wanted to share with you a fact about myself: I have autism. Not severe autism, but I have a milder form (Asperger’s Syndrome), though I do have a heavy case of that. It’s very difficult for me to talk to people, but, somehow, I’ve managed to get where I am today. I didn’t know about my autism until after I graduated high school. I’m currently a freshman in college and doing fairly well in all my subjects. I think, maybe, autism is not the burden people think it is. It’s hard sometimes, but it’s not something that’s “wrong” with people. We’re just, well, different. I think that people with autism, as well as people with other medical conditions, are actually gifts from God to show that life is a wonderful thing. Perhaps all people should try to stop and focus on things (an autistic trait), and the world would be less stressful.
Good luck! And God Bless You and Your Family!
Sincerely,
Kira
P.S. This is a really good autism support website if you ever need one:
http://www.wrongplanet.com
Kira: Thank you so very much for writing and sharing your story, it has really been great to hear from you. I know for me that the biggest concern I have is to not be able to TALK with my child and check in with his thoughts and share. Non-ASD people are so immersed in verbalizing and sharing (for better or worse) that when we cant do this – its hard to adapt.
With your comment, I feel so very much more hopeful. Please keep in touch and I wish you much luck with the studies!
Cora: thanks for your comment! Yeah, the stat STILL seems freaky to me. I want to hold a press conference say “What the hell people, why isnt this a Level 1 national emergency – this is a freaking epidemic and no one is paying attention!”
But hey, no one would come and I would be left there yammering to myself!
Bee: thank you!